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Stalking my walking.

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Google Now tells me I have walked 74 km in February (one of the last meaningful acts of my phone before it passed away). That’s mostly me walking from my bus stop to work and back, 3.6 km everyday, something I don’t consider exercise to the point that I undergo serious bouts of self-criticism about “not exercising enough”. I post this because I, like many around me, am very concerned about the amount of digital surveillance in our society. Everyday, Snowden’s document dump brings new revelations. Yahoo webcam images, anyone? But the benefits of benign surveillance are potentially big. I would like my phone to remind me that I am exercising, that my bus is scheduled to arrive in 5 minutes (of course, BC Transit does not have real-time information, so this is theoretical), that I am near a grocery store that has my favourite cereal on sale (this would need open data on retail prices), that my neighbour on the bus is reading the same book that I am (okay, too much!).

Cellphones are now intelligent, location and context aware. They can do a lot of good. Hell, I’ll even tolerate the use of some of my metadata for advertising and information gathering as long as it is transparent. But the data is also used by governments non-transparently to track my movements and actions, and I am deeply uncomfortable with it. Till now, my gee-whizness and fairly high belief in the value of a trust-based open information commons keeps me from closing off these data streams. If we stop trusting in the good of an open internet and stop contributing, the internet is seriously harmed.

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    Endocrine Disrupting Chemicals – A new Resource

    Critical Windows of Development is a timeline of how the human body develops in the womb, with animal research showing when low-dose exposure to endocrine disrupting chemicals during development results in altered health outcomes.

    Critical Windows of Development

    This promises to be an easy to use database showing development timelines of infants, and the documented effects of endocrine disrupting chemicals at these timelines. The prime focus is bisphenol A and phthalates at this point in time. The Environmental Health News has more about the program here. It is not out for public consumption yet, so stay tuned…

  • Open Data: Let’s talk about more than just government

    Victoria is hosting its open data day and Hackathon Saturday the 23rd (Facebook Link). I plan on being there because I support openness and transparency, I’d like to learn more about available data sets, and hangout with like-minded people. The City of Victoria has taken steps since 2011 through Councillor Marianne Alto‘s initiatives and more to facilitate more open governance. Like any other government entity, there is valid criticism and issues to navigate, but stated goals exist and progress can be tracked and critiqued.

    Enough people talk about open government data, and there’s consensus that governments should be more collaborative, open and participatory. But most of us spend more time and money interacting with non-government entities than we do with government entities. Look at your monthly budget. You will spend 30-40 percent on your mortgage or rent, goes to a non-government entity. The next biggest line items, probably groceries, car payments are all to private entities. Should we as consumers not expect the same open data sharing standards from our private entities as we do from government? The book Open Government, released for free by Safari books after Aaron Swartz’s death (does not appear to be free any more) has one chapter by Archon Fung and David Weil titled Open government and Open Society, which outlined my concerns very well:

    Enthusiasts of transparency, which most readers of this book are, should be aware of two major pitfalls that may mar this achievement. The first is that government transparency, though driven by progressive impulses, may draw excessive attention to government’s mistakes and so have the consequence of reinforcing a conservative image of government as incompetent and corrupt. The second is that all this energy devoted to making open government comes at the expense of leaving the operations of large private sector organizations—banks, manufacturers, health providers, food producers, drug companies, and the like—opaque and secret. In the major industrialized democracies (but not in many developing countries or in authoritarian regimes), these private sector organizations threaten the health and well-being of citizens at least as much as government.

    Open Government – Chapter 8 – Open Government and Open Society – Fung and Weil

    I wrote briefly about one aspect of open data in our private interactions, shopping receipts. We spend a lot of time, effort and money shopping, yet we’re very unlikely to leverage the power of data to help us shop better because our individual decisions are captured in paper receipts. But there are many more examples.

    1. Mortgages – Do you have to go to every bank/lender’s website to do a comparison? Ratehub is a start, is there an API or download capabilities?
    2. Real Estate Data – Realtors control real estate data in Canada, I would call this a major conflict of interest. There are efforts to open this data up a la the US, but slow going. This is the biggest market transaction any of us will undertake in our lives, but information is controlled by the agency that benefits most from our lack of knowledge.
    3. Rentals – Craigslist is notorious for hoarding data and going after people who want to present data in more useful formats. Community posted information is created by the community, but captured by private entities due to network effects (everyone’s on craiglist, so I need to be there too, regardless of their data policies).
    4. Insurance markets – Government provided insurance information (ICBC – Car, MSP – health) is transparent. Try getting insurance in the open market for condos, homes and more, you’ll find the same pdf/paper quote formats that make it difficult to compare and choose wisely.
    5. Corporate governance – There is so much information missing on actual corporate structures, ownership, directorship, brand ownership and lobbying
    6. Pollution and resource use. Do we have a good idea what companies pay for water or power? Do we have a way of understanding who pollutes what and where?

    My goal on open data is to advocate for openness in all of society, not just in government. Also, just because data is available does not mean it is open. APIs and download capabilities are key.

    So, when you think open data, do try and shift your gaze away from government occasionally. Remember that your housing decision is much more critical than the salary information for the assistant city manager, so openness is vital everywhere.

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    Update: as Kevin pointed out on twitter, the federal tax bill is pretty big. I was talking more in terms of the municipal parts like property taxes. The point nevertheless stands, we pay private entities large sums of money under poor data transparency conditions.

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    CMA condemns Asbestos

    The Canadian Medical Association Journal is denouncing the federal government for what it expects will be Canada's continued efforts to block international controls on asbestos at UN-sponsored negotiations next week.

    A strongly worded editorial, appearing in tomorrow's issue of the journal, says the government "knows what it is doing is shameful and wrong" and compared Ottawa's moral stature in continuing to promote the use of the cancer-causing material to that of arms traders.

    The negotiations, known as the Rotterdam Convention, are to start Oct. 27 in Rome. The focus of the talks will be on whether to add the chrysotile variety of asbestos to the world's list of most dangerous substances. Once a substance is listed, countries must give prior informed consent that they know they are buying a highly dangerous material before being allowed to accept any imports.

    via globeandmail.com: Medical journal blasts Ottawa for promoting asbestos abroad

    Canada’s national shame, its export of a killer product not used by Canadians to developing countries where the safeguards it insists on for the ‘safe” use of this product can’t possibly be carried out or enforced. For god’s sake, it’s 700 jobs, and people who can be retrained to do something that does not kill people.

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    Brazil bypasses patent on U.S. AIDS drug – Yahoo! News

    As I mentioned previously, compulsory licensing is a perfectly legal option underlined by TRIPs (Agreement on Trade-Related Aspects of Intellectual Property Rights) in response to national emergencies for governments to authororize the bypassing of drug patents. Thailand threatened to do it recently, Brazil goes one better.

    Brazil bypasses patent on U.S. AIDS drug – Yahoo! News

    President Luiz Inacio Lula da Silva took steps Friday to let Brazil buy an inexpensive generic version of an AIDS drug made by Merck & Co. despite the U.S. drug company’s patent.

    Silva issued a “compulsory license” that would bypass Merck’s patent on the AIDS drug efavirenz, a day after the Brazilian government rejected Merck’s offer to sell the drug at a 30 percent discount, or $1.10 per pill, down from $1.57.

    The country was seeking to purchase the drug at 65 cents a pill, the same price Thailand pays.

    This story fits the script in every possible way. Here’s the drug company’s “disappointed” response:

    Amy Rose, a spokeswoman for Whitehouse Station, N.J.-based Merck, said earlier that the company would be “profoundly disappointed if Brazil goes ahead with a compulsory license.”

    “As the world’s 12th largest economy, Brazil has a greater capacity to pay for HIV medicines than countries that are poorer or harder hit by the disease,” Merck said in a statement after Silva’s announcement.

    Ah, the irony of a large pharma company appealing to Brazil’s sense of fairness!

    The usual US government/chamber of commerce type’s scold and threat to withold further foreign investment:

    But the U.S.-Brazil Business Council said the decision was a “major step backward” in intellectual property law and warned it could harm development.

    “Brazil is working to attract investment in innovative industries … and this move will likely cause investments to go elsewhere,” the council said in a statement.

    Who are the US-Brazil Business Council? It is an affiliate of the U.S Chamber of Commerce. Its website reveals it to be a lobbying and networking group of high powered U.S executives “fostering” U.S-Brazil trade relations. Hmm, I wonder who’s side they will take!

    But, we forget what this is about, the health of thousands of AIDs patients (and the money it costs to treat them).

    Brazil provides free AIDS drugs to anyone who needs them and manufactures generic versions of several drugs that were in production before Brazil enacted an intellectual property law in 1997 to join the WTO.

    But as newer drugs have emerged, costs ballooned and health officials warned that without deep discounts, they would be forced to issue compulsory licenses.

    Efavirenz is used by 75,000 of the 180,000 Brazilians who receive free AIDS drugs from the government. The drug currently costs about the government about $580 per patient per year.

    Brazil is doing absolutely the right thing by bargaining and playing hardball. it wants to pay the same prices Thailand pays, and should continue to bargain till it gets there. There’s no sense in being a sovereign powerful nation if you can’t shakedown a pharma company, is there!

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    Asbestos stays off global dangerous-substance list

    NDP MP Pat Martin said Tuesday the Canadian delegation did not even participate in the discussions this year but got others to work on their behalf instead.

    He accused the Canadians of browbeating developing nations such as India, Pakistan and Vietnam — some of Canada's largest chrysotile customers — into opposing its inclusion on the list.

    "It's not a proud day for our country," said Martin, who attended the convention and spoke by telephone from Rome.

    via Chrysotile asbestos stays off global dangerous-substance list

    Canadians can now breathe easy. The government did not even have to oppose a notification officially, other countries did it for them.

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    Common chemicals are linked to breast cancer

    The LA Times features a study arising from the Silent Spring institute.

    Common chemicals are linked to breast cancer – Los Angeles Times

    More than 200 chemicals — many found in urban air and everyday consumer products — cause breast cancer in animal tests, according to a compilation of scientific reports published today.

    Writing in a publication of the American Cancer Society, researchers concluded that reducing exposure to the compounds could prevent many women from developing the disease.

    The research team from five institutions analyzed a growing body of evidence linking environmental contaminants to breast cancer, the leading killer of U.S. women in their late 30s to early 50s.

    Experts say that family history and genes are responsible for a small percentage of breast cancer cases but that environmental or lifestyle factors such as diet are probably involved in the vast majority.

    “Overall, exposure to mammary gland carcinogens is widespread,” the researchers wrote in a special supplement to the journal Cancer. “These compounds are widely detected in human tissues and in environments, such as homes, where women spend time.”

    The scientists said data were too incomplete to estimate how many breast cancer cases might be linked to chemical exposures.

    The resources to come out of this study include two databases, one that summarizes animal mechanistic studies, and one that summarizes human epidemiological studies. It’s a good start and I hope these databases are continually expanded. The study was essentially a big lit review and data organization project.

    There are two major issues with the way carcinogenicity is studied. Firstly, animals other than humans are dosed at high levels to test for possible cancer outcomes. This leaves most researchers vulnerable to the charge that these high dose studies do not translate well to humans because the dose-response relationship at ambient levels is not well studied. So, the obvious criticism is that just because cancer endpoints were seen at high levels does not mean that the same thing will happen at low levels. This cuts both ways, though. We’re seeing with bisphenol A that low doses can cause more harm than intermediate doses. Another issue is the additivity of the interactions. Does 1 “dose” of PAH + 1 “dose” of PCB = 2 “doses” of PAH? We’re exposed to a whole host of chemicals all our lives, who knows which ones add, which ones subtract, which ones multiply, etc.

    Of course, as with most diseases, some macro variables dominate. For instance, the US has seen 8-9% decline in breast cancer incidence recently due to a decreased use of hormone replacement therapy. So, as with all diseases, taking care of some of these big ticket items is very important. One discouraging story I read today reported on a four percentage point decline in mammograms (70 to 66%) in women age 40 and older. Why? decreased access to health insurance and dropping the ball on promotion.

    The depressing fact of the matter is that the boring basics of good preventative healthcare, screening, good lifestyle and diet are the most important factors, and if we take care of these factors, we will make most health issues easier to deal with.

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